NEURO NEWS
My Neuro Survey
22 July 2024
People living with neurological conditions across the UK and Ireland are being asked to take part in the largest neurological survey to help improve vital services and support.
The Neurological Alliance – a leading coalition of over 90 charities in England working to transform quality of life for people with neurological conditions – runs My Neuro Survey every two years to gain valuable insights into care, treatment and support across the country.
The survey is conducted in partnership with the Neurological Alliances of Scotland, Wales, Northern Ireland, and the Republic of Ireland. This year, for the first time, the survey also looks at the experiences of friends and family of people affected by neurological conditions (also known as informal carers).
One in six people in the UK have a neurological condition – that is a condition that affects the brain, spine and/or nerves. There are over 600 neurological conditions, including dementia, ataxia, migraine, epilepsy, Parkinson’s, multiple sclerosis, motor neurone disease and cerebral palsy.
The survey – which had over 8,500 responses in 2021/22 – asks questions about daily life, mental wellbeing, diagnosis, treatment, support, and access to research.
Your experiences help to build an accurate picture of the quality of treatment, care and support for people with neurological conditions. They will help show where access to and quality of care is good, and where it is lacking or could be improved.
Previous survey results have been used to improve services in hospitals, develop new specialist centres, support business cases for new healthcare professionals, and provided the evidence needed to call on the government to #BackThe1in6 people living with neurological conditions through the establishment of a nationwide Neuro Taskforce.
The 2024/25 survey is open for participation until 15 November 2024.